- You are invited to complete this one-off online survey about a new type of health screening. Before deciding, please read the following information.
- This study is being conducted by Ninian Schmeising Barnes, Prof. Jo Waller, Dr Emma Lidington and Dr Elisavet Moschopoulou. It has been approved by Queen Mary University of London’s Research Ethics committee (REF CODE)
- The purpose of this study is to understand views on a new health test called capsule sponge screening. You are invited to take part because you are a man aged 55–79 or a woman aged 65-79 and either experience acid reflux symptoms or take medication for acid reflux or heartburn. You should not take part if you have ever had, or currently have cancer of the food pipe, or Barrett’s Oesophagus, or if you have ever had a capsule sponge test before.
- The online survey will take 10 minutes to complete. You will be asked a series of questions about a new health test. We will give you some information about it, so don’t worry if you haven’t heard of it before. Taking part is completely voluntary. If you withdraw during the survey, your answers will not be used in our analyses. Please answer all questions. Some questions have the option: “prefer not to say” if you would rather not answer them. Once you have completed the survey, withdrawal is not possible.
- We do not think there are any risks to this study, but some people can get worried or distressed when they learn more about certain health risks.
- Your answers will be stored securely according to data protection law. Your data will be anonymous and will only be used for research purposes. It will be stored in a Sharepoint folder that can only be accessed by the research team. The data will be analysed by researchers at Queen Mary University of London and may be shared with other researchers for future studies. We will keep your anonymised data indefinitely.
- This research is being run by Queen Mary University of London and funded by Cancer Research UK. The research findings will be published in academic journals. If you have any concerns about the manner in which the study was conducted, in the first instance, please contact the researcher(s) responsible for the study: Prof. Jo Waller (jo.waller@qmul.ac.uk)
- If you have a complaint which you feel you cannot discuss with the researchers, then you should contact the Research Ethics Facilitators by e-mail: research-ethics@qmul.ac.uk.
- When contacting the Research Ethics Facilitators, please provide details of the study title, description of the study and QMERC reference number (where possible), the researcher(s) involved, and details of the complaint you wish to make. Queen Mary University of London processes personal data for research purposes in accordance with the lawful basis of ‘public task’.
- Please read Queen Mary’s privacy notice for research participants containing important information about your personal data and your rights in this respect.
- If you have any questions relating to data protection, please contact Queen Mary’s Data Protection Officer, Queens’ Building, Mile End Road, London, E1 4NS or data-protection@qmul.ac.uk or 020 7882 7596.
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